Prostate Cancer Resources and Links
Arriving at a decision about the best prostate cancer treatment for you is often a confusing and complicated process. Fortunately, there are many information resources available on the Internet. These include medical research reports, the experiences and support of other prostate cancer survivors, and clinical trials of new treatments. This information is compiled by Nancy Peress peress@erinet.com.
Please note: These are simply pointers to Internet-based PCa resources, and should not be regarded as any sort of recommendation or endorsement. It's up to you to carefully weigh the information you find, and discuss it with your own physician.
In addition to Internet resources, many communities have a prostate cancer support group that meets regularly.
LITERATURE1- "Organizing And Implementing A Walk For Any Cause". This 50 page How To Manual has step by step instructions and hints for having a walk. For more information and comments, contact Stan Klein at 617-625-4875 or e-mail at klein@gis.net
2- "Interviews With Your Prostate Cancer Doctors" is a guide to newly diagnosed men and anyone who may be revisiting his physcians. It contains a series of questions to ask the 3 prostate cancer specialists, along with some hints.
MAILING LISTS
Physician To Patient
The purpose of the p2p mailing list is to provide the prostate cancer patient or other interested parties with information from physicians about the treatment of prostate cancer. This is a moderated list without the high volume normally associated with mailing lists or the frequent off-topic questions. To subscribe, send an email
To: majordomo@prostatepointers.org
Subject: (blank or a dash)
subscribe p2p
end
Within a few minutes, you should receive a confirmation message from majordomo. Please follow the instructions *exactly* in order to activate your subscription.
IMPORTANT:
Every message sent to p2p must contain a Prostate Cancer Digest.
Instructions for preparing your digest are in the first issue of PCRI
Insights, which you can get in .pdf format here:
http://www.prostate-cancer.org/resource/insights.html
The same instructions are also available as a web page:
http://www.prostatepointers.org/p2p/pcd.html
The Circle
Support for wives, families, friends, and significant others of men with prostate cancer -- and, of course, the men themselves. To subscribe, send an email
To: majordomo@prostatepointers.org
Subject: (blank or a dash)
subscribe circle
end
Within a few minutes, you should receive a confirmation message from majordomo. Please follow the instructions *exactly* in order to activate your subscription.
SeedPods
A mailing list for those interested in brachytherapy (radioactive seed implants) as a treatment for prostate cancer. To subscribe, send an email
To: majordomo@prostatepointers.org
Subject: (blank or a dash)
subscribe seedpods
end
Within a few minutes, you should receive a confirmation message from majordomo. Please follow the instructions *exactly* in order to activate your subscription.
Massachusetts Prostate Cancer Coalition
This organization advovates education, awareness and raises money for prostate cancer research.
RP
A mailing list dedicated to the needs and concerns of radical prostatectomy patients. The sole purpose of this list is to narrowly focus on the concerns of those who have already had an RP or have selected RP as their treatment. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo
IceBalls
A mailing list offering information and support to those interested in cryosurgery for prostate cancer. To subscribe, send an email
To: majordomo@prostatepointers.org
Subject: (blank or a dash)
subscribe iceballs
end
Within a few minutes, you should receive a confirmation message from majordomo. Please follow the instructions *exactly* in order to activate your subscription.
CHB
CHB offers discussion and support for patients interested in any form of hormonal blockade. This includes: orchidectomy, medical hormonal blockade [lupron, flutamide, proscar, etc.] as well as food supplements. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo
EBRT
EBRT offers discussion and support for patients interested in any form of radiation therapy for prostate cancer. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo
WW
WW offers discussion and support for patients interested in Watchful Waiting as a strategy for the management of prostate cancer. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/ww
Prostate Cancer and Intimacy
PCAI is an unmoderated mailing list for frank and open discussion of the sexual issues surrounding PCa. To subscribe, send an email
To: majordomo@prostatepointers.org
Subject: (blank or a dash)
subscribe pcai
end
Within a few minutes, you should receive a confirmation message from majordomo. Please follow the instructions *exactly* in order to activate your subscription.
Spirit
Spirit is a mailing list for those who want to share spiritual support as they live with prostate cancer. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/spirit
Promise
A mailing list for those grieving a loss. Also offers help and support to those with a spouse, partner, or family member in the last stages of life. To subscribe, send an email
To: majordomo@prostatepointers.org
Subject: (blank or a dash)
subscribe promise
end
Within a few minutes, you should receive a confirmation message from majordomo. Please follow the instructions *exactly* in order to activate your subscription.
Prostate Problems Mailing List (PPML)
An unmoderated forum which discusses problems and treatments related to men's prostate gland. Discussion includes symptoms, diagnosis, treatment alternatives, complications and personal impact. The intent is to help patients and their loved ones understand their illness and make informed treatment decisions; to encourage self-study of the effects and treatment of prostate diseases; and to support research into the cause and cure of prostate problems as well as encourage effective health care.
To subscribe to the PPML:
Choice 1 - Easiest - Access this URL: http://www.acor.org/prostate.htmll
and follow the instructions
Choice 2 - Send an email
To: LISTSERV@LISTSERV.ACOR.ORG
Subject: blank or dash
Message: SUB PROSTATE Firstname Lastname
(substitute your real name for Firstname Lastname)
For help with subscribing - email PROSTATE-REQUEST@LISTSERV.ACOR.ORG
Prostate Cancer Action Network
A forum for discussing important issues affecting the care and treatment of prostate cancer survivors, and ways to bring about needed change. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo
Vietnam Veterans with Prostate Cancer, Agent Orange Exposure
To subscribe, go to:
http://www.groups.yahoo.com/group/PHCa-Veterans
Humor And Healing
HAH is a humor list for the online PCa community, more intimate and friendly than the big Internet joke lists. To subscribe, go to
http://www.prostatepointers.org/mailman/listinfo
PROSTATE CANCER WEB SITES
Malecare: Men Fighting Cancer Together
http://www.malecare.com
Prostate Pointers
http://www.prostatepointers.org/prostate
Prostate Cancer Profiler
http://www.cancerfacts.com/portal.asp?CancerTypeId=1
Prostate Cancer Research Institute (PCRI)
http://www.prostate-cancer.org/
Prostate cancer acronyms and abbreviations:
http://www.prostatepointers.org/prostate/ed-pip/acronyms.htmll
Prostate cancer glossary of terms:
http://www.prostatepointers.org/prostate/ed-pip/glossary.html
Information provided by Nicholas Bruchovsky, MD
http://www.prostatepointers.org/bruchovsky
Information provided by Fernand Labrie, MD
http://www.prostatepointers.org/labrie
Information provided by Robert Leibowitz, MD
http://www.prostatepointers.org/prostate/leibowitz
Information provided by Charles Myers, MD
http://www.prostatepointers.org/cmyers
Information provided by Jonathan Oppenheimer, MD
http://www.prostatepointers.org/virtual_lab
A comprehensive list of papers by Steve Strum, MD
http://www.prostatepointers.org/strum/
Information provided by Israel Barken, MD
http://www.prostatepointers.org/barkenn
Physician to Patient
http://www.prostatepointers.org/p2p
SeedPods
http://www.prostatepointers.org/SeedPods/
IceBalls
http://www.prostatepointers.org/iceballs/
The PCAI list of ED specialists
http://www.prostatepointers.org/pcai/ed.html
The Circle
http://www.prostatepointers.org/circle/
Organize your PC digest:
http://www.prostatepointers.org/p2p/pcd.html
Tom Feeney's Watchful Waiting page:
http://www.prostatepointers.org/ww/
Search prostatepointers.org
http://www.prostatepointers.org/search_form.html
National Prostate Cancer Coalition
http://www.pcacoalition.org/
Medscape's Prostate Cancer Resource Center
http://oncology.medscape.com/Medscape/features/ResourceCenter/PC/public/RC-index-PC.html
The Education Center for Prostate Cancer Patients
http://www.ecpcp.org/main.html
Prostate Cancer Resource Guide
http://www.afud.org/pca/pcaindex.html
National Cancer Institute's CancerNet PCa Resources
http://cancernet.nci.nih.gov/Cancer_Types/Prostate_Cancer.shtml
The Hypertext Guide to Prostate Cancer
http://www.hypertext.org
Florida Cancer Education Network
http://www.florida-cancer.org/
A Primer on Prostate Cancer
http://www.phoenix5.org/Basics/DPprimer0918.html
Phoenix5
http://www.phoenix5.org/
Prostate Cancer InfoLink Archive
http://www.phoenix5.org/Infolink/index.html
PPML web site
http://listserv.acor.org/diseases/prostate
PPML archives
http://listserv.acor.org/archives/prostate.html
MultiGraph: your medical history in graphic form, free from PC-REF
http://members.home.net/jfistere/MultiGraphIntro.htm
WellnessWeb Prostate Cancer Center
http://www.wellnessweb.com/PROSTATE/prostate.htm
Center for Prostate Disease Research
http://www.cpdr.org/
Patients Helping Patients/Prostate-Help Mailing Lists
http://www.cooleyville.com/cancer/
Us Too!
http://www.ustoo.org
Canadian Prostate Cancer Network
http://www.kaptiv-8.com/cpcn/
PSA Rising Magazine
http://www.psa-rising.com
Prostate Cancer Action Network
http://www.prostatepointers.org/pcan/
Visit the Prostate Events Calendar at
http://www.prostatepointers.org/calendar/index.phtml
Visit the SeedPods web site at http://www.prostatepointers.org/SeedPods
To unsubscribe, see http://www.prostatepointers.org/SeedPods/unsub.html
Be aware that much of this material represents the opinions and interpretations of other patients, and sometimes medical professionals. Recommendations should NOT be regarded as professional advice. Conduct your own research and discuss your options with health care professionals involved in your care.